Wednesday, June 8, 2016

A note on Locked-in Syndrome 

There is a generalized misconception that all locked-in patients prefer to die instead of stay in dreadful locked-in state. On the contrary, one study of 13 survivors from an initial cohort of 29 patients showed following results

  • satisfaction with life was expressed by 7 patients, 
  • occasional depression was reported for 5 patients, 
  • euthanasia was never considered by 7, 
  • euthanasia was considered but refused by 6, and 
  • a wish to die was expressed by 1 patient, 
  • None had  DNR directives


 Doble JE, Haig AJ, Anderson C, Katz R. Impairment, activity, participation, life satisfaction, and survival in persons with locked-in syndrome for over a decade: follow-up on a previously reported cohort. J Head Trauma Rehabil 2003; 18:435.

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